November 30, 2011

IT'S ALMOST HERE!

Can't believe after all of these weeks, the half-marathon weekend is almost here.  We received our Team Challenge racing singlets last night at our send off party.  It made everything seem real now.  On Sunday, we will be doing a half-marathon!  I am still nervous, mainly because the last month has been hard to train with me being sick at different times, but I am still confident that we can complete the half-marathon. I will complete it so I can say that I have done something to not let Crohn's disease control my life.  It has not been a easy process, but one that has made me stronger and done something proactive to gain back some of that control in your life.

It has been a very therapeutic process and I cannot imagine how I will feel this weekend.  I am looking forward to the pasta dinner hosted by the CCFA on Saturday night that brings together all of the Team Challenge teams from across the United States.  It is suppose to be a very emotional and moving experience.  Then on Sunday night, with my lovely wife and teammates we will hit the strip to finish the half-marathon.  Even before the race, we are all winners due to all of the generous donations to the CCFA.  These are crucial in helping us find new treatments and hopefully one day a cure.  I hope my daughter, Rowan, never has to worry about either of these dreadful diseases.  Our Kansas City Team Challenge group has done great so far and raised over $54,000 for the CCFA.  Thanks again for all of the support, I will never be able to express how grateful I really am.

Mark

November 27, 2011

One Week

It's hard to believe that this time next week we'll be getting revved up, geared up, and psyched up to walk the marathon. We received the itinerary for the weekend and it looks like there will be a good amount of free time -- I kinda keep forgetting that we'll be in Las Vegas for this. There will be things to do outside of walking 13.1 miles.

Friday = arrive in the evening, free time for dinner
Saturday = free time in morning, Race Expo in afternoon (get all our race gear), Team Challenge Pasta Dinner in evening (testimonials, encouragement, and guest speakers)
Sunday = free time in morning, meet at starting line at 4pm, race at 5pm (have to be done in 4 hours), after race shenanigans
Monday = free time in morning (aka nursing sore muscles), flight home in evening 

I'm anxious. And excited, but mostly anxious. Not just about the race; about all of it. Training, prep, travel, logistics. I've always been really good at worrying.

Since the 10 mile training, neither of us have walked further. I mean we've done the shorter distances, but we missed the 12 mile trek last weekend. About two weeks ago, Mark got really sick with a virus. A compromised immune system is part of the deal with the drugs available to treat Crohn's. It took him out of the game for a full week; the week after, while no longer suffering from a raging fever, he had zero energy. Just enough to get him through the day, basically.

When he's sick like that, I play multiple roles -- mom, wife, nurse, employee. The last thing on my mind was training. Then, as luck would have it, I got a version of his virus and couldn't go five steps without hacking up a lung. This weekend is the first one in two weeks where we've both been back on our feet...and we've got one week we left before the big day.

So! This week, I'm paying particular attention to the time I have available to train -- even if it's just 3 miles Monday, Wednesday, and Friday. No matter what, I will finish this marathon. And I'm carrying over 20 names across that finish line with me. I'll post an entry with those names closer to race day.

Mark's mom, sister, and an aunt are traveling out to Vegas to support him. My mom, bless her, is traveling out here to watch Rowan. This week will include, among other things, pulling together suggestions for activities and directions for locations around town Mom's never been to on her own before. I'm anxious about all of us being away from Rowan, and about Rowan and Mom being alone for those days. I'm anxious about Mark traveling: that always results in him getting sick and/or a flare up; the gamble is just if it will happen during or after the trip itself.

And I'm anxious about the fact that there are over 44,000 people in this marathon. That's a LOT of people.

Really, when it comes down to it? The only thing I'm not anxious about is walking the marathon. Which is odd, really, because that's what I keep talking about: finishing 13.1 miles. The thing is, I know I can do it. I know I can. I might feel like I've been hit by a truck afterwards. I might hobble to the plane the next day. I may cry when it's all over (let's face it, I probably will).

But I can do this.

I can do it with my husband, for my husband, and because of my husband. I can do it because he's doing it -- after all he's been through in his life and in this last month, he's doing it.

I'm proud to be part of this event. Proud that we made this decision to raise the money we've raised and take on this challenge one step at a time. Proud that my husband has something he can say he's doing (and did) that actively helped find a cure for this awful disease.

And I can safely say this will most likely be a once in a lifetime event. At least for me. *smiles*

Mark and I will be updating our blog as we get to Vegas and go through the events of the weekend. If you stay tuned, you can be part of the action with us. Or you can just read up after the fact. We have the support of some amazing people who put us $1,000 over our goal (a goal that was incredibly daunting when we first started out) and because of them, I know we won't fail, no matter what the outcome of next Sunday is. We won't fail because we've already brought that much money to the cause.

In one week, all this training and preparation and anxiety will be a happy memory, but the funds we raised -- because of you guys -- will keep on working. Even if we come in last, I kinda feel like we already won.

-- Amanda

November 15, 2011

DETOUR

Our fundraising continues to go great, even after reaching our goal. We currently stand at $8,041, thank you! It has been a down week on the training for me as my body has not been cooperating. Due to the medications that I am on (Cimzia and Prednisone), I am very susceptible to getting infections due to the fact that these medications lower your immune system and make it tough to fight of infections.  I usually have a "48 hour" rule, if I am feeling flu like symptoms and they do not get better in a 48 hour period, I get into the doctor to make sure that I am not developing a more severe infection. 

I started noticing some signs on Saturday, and by Sunday my throat was raw and sore and had on and off fevers.  Made it into the doctor on Monday, and was told most likely it was Strep and began treatment for that. Hoping the antibiotics kick in soon because I have been quite miserable.  As a result my training over the weekend and so far this week as been put on hold.  I am still confident that I will be able to complete the half marathon.  This is just another small detour in completing this goal. Hopefully this is just me getting the sickness out of my body before Las Vegas.  Think positive, right? 

Mark

November 7, 2011

WE DID IT! THANK YOU!

Thanks to all of our generous family and friends, we have surpassed our fundraising goal of $7,200.  We currently stand at $7,211!  We are overwhelmed with the love and support we have received, it means so much to us to do everything we can to find new treatments and hopefully a cure someday for these dreadful diseases. We have received donations from 20 states and 5 countries. Incredible.  All of your support is helping push us forward to be able to complete the half marathon in December.  Please feel free if you want to still donate even though we have reached our fundraising goal, because the more money we raise the better for the Crohn's and Colitis foundation.  THANK YOU!!!!

Countries we received donations from:
1) United States
2) Australia
3) England
4) Canada
5) Israel

States we received donations from:
1) California
2) Indiana
3) Utah
4) Kansas
5) Nebraska
6) Pennsylvania
7) Virginia
8) South Carolina
9) Illinois
10) New Jersey
11) Minnesota
12) Iowa
13) Michigan
14) Texas
15) Florida
16) Colorado
17) Georgia
18) North Carolina
19) Missouri
20) Arkansas

http://runkeeper.com/user/301670892/activity/58825492

http://runkeeper.com/user/301670892/activity/58825492

November 6, 2011

At least my eyelashes didn't hurt (aka 10 miles down)

Yesterday, Mark and I completed the longest training distance yet: 10 miles.

I was dreading it a bit, the whole week prior. I was convinced I would throw up or cry or something equally as embarrassing (I didn't throw up...but there were tears).

We decided to do this one with the team as it was a long one; our good friends who live in the Kansas City area let us stay overnight at their house so we'd be closer and they'd be able to watch Rowan. They have a little girl her same age, so we thought that would be a good deal both ways. We failed to take into account the inability of a five-year-old to easily acclimate to new surroundings. While she wanted to sleep in her friend's room, Rowan was not used to the quiet darkness her friend slept best in (she's always slept with music and a nightlight of stars).

About 12:30am, we woke up to her tragic tears and brought her into the guest room to sleep between us -- and as anyone with a child will tell you, that was not a restful sleep. Mark and I rose at 6am, neither having slept more than 3 hours, tops. But, we were committed, so after reassuring Rowan, crossing our fingers, and muttering a few prayers that she stayed in her room and quiet until our hosts got up, we left for the training site.

It was cold, ya'll. Kansas is notoriously windy and at 7am it's still dark. Dark, 43 degrees, and windy...I was ready to get going just to warm up. My left knee and right hip had vehemently protested movement after our 6 mile session, so I was a bit worried. I stretched...but clearly not enough. The route was throughout areas of downtown Kansas City that I'd never seen in the daylight, let alone at 7am.

It took us 1.5 miles one direction and back, then 2 miles another direction and back, then the original 1.5 miles and back, totaling 10. It was fairly flat, though each section had us going under overpasses, littered with broken bottles, trash, and shopping carts, and prompting images of every Criminal Minds and CSI I've ever seen. Being a fan of Supernatural didn't help matters much, either. I just stayed close to Mark and every time we were passed by one of our teammates, I made sure they were at least in pairs -- or close to another group of pairs.

Not sure what I would have done were they alone, but it made me feel better to check.

As we finished the first 3 miles, it had gotten light enough that my eyes were playing tricks on me -- the time of day when fire hydrants looked like small kids, and a ball of blowing trash looks like a sprinting cat. Me = vivid imagination. I wasn't tired, though. It has started to amaze me how easily I'm now able to walk 3 miles. My shin muscles sang a bit with the exertion, but they weren't acutely painful as they'd been in the past.

At the first checkpoint, Mark and I tried the gel packs provided, intended to refuel the runner (I have no idea if they made a difference, to be honest -- and they're definitely an acquired taste), and it was clear we were the caboose in this train. There are others who have said they're going to be walking, but the rest of the team who showed up to the training session were all runners.

Let them run. Run, team, run. Mark's Crohn's couldn't take more than the brisk walk we were managing and my body would have rebelled long ago. I know when people think 'marathon' they think 'ran a' but we will be walking. Proudly. It's not about when we finish, it's simply about finishing.

The second leg was tougher because Koach Karl decided to throw a hill into a mostly flat course. And by 'hill' I mean '90 degree angle that had been miraculously paved.' We were trekking up an isosceles triangle, I kid you not. I couldn't make it to the top. My body was shaking from the inside out. Mark kept going and I just watched him, feeling ashamed that my healthy body couldn't do what his diseased one could.

Then he stopped. He turned around and I saw his face was splotchy and he was shaking his head. I felt a surge of selfish relief: he hadn't been able to crest it either. The seton had been rubbing a bit even before we got to the hill and when he got back to me he said it hurt too bad. That's when the tears came. Relief, worry, weariness, who knows. I wasn't sobbing. It was just brief omgIcan'tbelievewe'redoingthis tears that I banished quickly, but he noticed.

As we made our way back down the hill, he said I needed to not psyche myself out so much. I need to tell myself that I could do this -- because I was doing this. I didn't answer, knowing that I'd already told myself, 'If I can do 10 miles, then I can do 12. If I can do 12, then 13.1 will be nothing.' I had to finish this walk to find the light inside me to meet this promise we'd made to ourselves and to so many other people.

By the time we began the 3rd leg, it was daylight, and I was dragging. I'd already played through story scenarios, written prologues and various scenes in my head, and thought through Rowan's Christmas list. I was reaching the edge of this push and I could feel it. When he called back to me -- he was about two lengths ahead that last leg -- that we had hit 8 miles I couldn't decide if I wanted to laugh or cry. I did neither, just pushed on.

I sit in wonder of those who do this all the time. Those who run 10 miles before many of us get up in the morning. Those whose bodies feel good when they finish. I am not one of those people. Maybe I would be if I kept this up, but I'm not now. I know there are those who can and do push themselves well beyond this effort, but this was hard for me.

It was hard and I was doing it. I used that as my fuel to the end.

We finished in 2 hours and 53 minutes. Not cresting that hill meant we actually finished 9.90 miles (according to his runtracker app on his phone), but I'm counting it.

When we finished, I hurt. Everything hurt. From the joints in my toes to my lower back, but especially my left knee and right hip. My hands were swollen (not sure why, but they swell up on walks longer than 3 miles), my neck ached. Only my eyelashes were spared. We kept the rest of the day as normal as possible -- taking Rowan to lunch for being such a good girl, doing a little window shopping -- but when we got home I felt like I'd been hit by a truck.

Mark kept saying he was sore when I asked, but he acted normal. I suppose he's had to deal with so many varying levels of pain this was just a shuffle into the mix. Ulceritive Colitis wrapped intense pain around his torso. Surgery left him without pain meds for 12 hours. Crohn's cramping is visibly painful, and with the abscesses and seton..., being sore after a 10 mile walk was just something he dealt with. And he did so with grace, as he does everything else.

I am both humbled by and built up by him, every day.

We all slept better last night. I think we learned our lesson: what we saved in driving distance was negated by lack of sleep. I think for the 12 mile training we'll stick close to home and enlist Grandma's help with Rowan. Then maybe bring the munchkin with us on the last training before the marathon.

It's getting closer. And somehow, I'm still here. I can't not be. There are currently 21 names on the list I'm carrying with me through the marathon. 21 people who suffer from this disease and can't do what we're doing. 21 people who need the treatments and cure this money can bring. 21 people...plus Mark.

*stretches sore knee*

-- Amanda